GolfStatus Announces Avery’s Hope As 2023 Play It Forward Winner
Avery’s Hope, an all-volunteer, grassroots organization that provides financial assistance to rare, ultra rare, and undiagnosed pediatric GI patient families, has been selected as the winner of the 2023 Play It Forward giveaway.
The Play It Forward campaign was held in collaboration with GolfStatus’ giving partners at Dormie Network and Dormie Network Foundation and celebrates organizations using golf to do good. Entrants were asked to nominate a golf tournament fundraiser to receive a $10,000 donation and were entered to win a one-year Dormie Network membership plus $10,000 to spend at the Network’s exclusive golf clubs.
Avery’s Hope’s inaugural TopGolf fundraiser was held June 25, and highlights the inclusive approach of the organization’s support of families with pediatric GI illnesses. Co-founder and executive director, Caryl Harris, says, “This year we hosted at TopGolf to be more inclusive for patient families, children, and those who don’t golf. By doing so, this event attracted a number of families who wouldn’t be able to afford or otherwise support a traditional golf outing.”
Avery’s Hope is named in honor and celebration of the founders’ grandson, Avery Harris, who was born with microvillus inclusion disease. The rare, genetically-inherited disease is characterized by an inability of the intestines to absorb nutrients. Avery’s grandparents realized how many other kids and their families were suffering, not only with their child’s illness but with the financial burdens, and wanted to make a difference.
Avery’s Hope has formed partnerships with major national institutions specializing in rare pediatric GI care, including five major children’s hospitals, the National Organization for Rare Disorders, and Patients Rising Now Helpline. The group focuses on alleviating the financial burdens of out-of-pocket and insurance-denied expenses faced by families, which often delay treatment and diminish quality of life.
The $10,000 donation will immediately be put towards supporting families. “Patient assistance organizations don’t always receive the same amount of financial support as those who raise money for research. Avery’s Hope has chosen to help with the immediate needs of families,” says Caryl.
Almost 600 organizations and golf fundraisers were nominated for this year’s giveaway, and two other finalists also received a donated Dormie Network membership to be used for fundraising opportunities: Coventry Reserve and Hope Strengthens Foundation.
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